Monday, December 22, 2008

Not me! Monday

Hey guys! Welcome to Not me! Monday. I love this little blog fun started at http://www.mycharmingkids.net/ So check it out, join in the fun, and have fun finding out how "perfect" we really are.

Okay, I did NOT just this past week change both Evan's main diaper pail plus the old standby diaper pail that we have. They were NOT completely packed full to over flowing with diapers. I did NOT change it b/c I was putting dirty diapers in plastic bags on the floor beside the pail and finally ran out of space. That would be so gross. The 30 gallon trash bag that did NOT get filled with the contents of both pails was NOT so heavy that I had to drag it down the stairs and across the living room floor and to the garage. It did NOT sit there for another three days until I finally had to heave it to the trash can. I did NOT almost throw my back out doing this. I mean come on who is that lazy??? I ALWAYS change the diaper pails before they overflow ;)


I have NOT threatened my kids one hundred times today to quit wrestling. The threat was NOT that I would tell Jack to tell Santa that the presents were not coming. I mean I would NEVER threaten with things that I could not follow through with.


I have NOT had the fleeting thoughts today that I am not going to make two weeks of school being out, and that I may have to be rescued. Not me!

Jack has NOT stayed in the same place for two different nights this week b/c I forgot to move him. I have NOT used the excuse that Jack must like that spot. The kids did NOT completely buy into it. I am NOT so bad at this job of relocating Jack.


Our family did NOT stay in our pjs all afternoon. I did NOT contemplate letting Evan sleep in the same pjs as he wore last night and all day long. I did decide to change him though. What kind of mother do you think I am?


and last but not least. I did NOT clean my bathroom today. I am NOT embarrassed to admit that it had been a really LONG time. So long that my sinks were crying tears of joy for seeing some cleaner and a sponge. I am NOT going to blame it on the fact that I have a baby. Wait though that baby is NOT now 9 months old so he is no excuse. Who waits that long to clean their bathroom? Not me!


Merry CHRISTmas everyone!!
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3 comments:

TuTu's Bliss said...

Hugs and Happy Monday!!

December 22, 2008 at 8:10 PM
Jenny said...

I LOVE your Not Me! Monday posts and look forward to them every week! They always make me smile and feel better about the things that I'm NOT doing either! ;) Love you Gin!

December 22, 2008 at 8:22 PM
Mercer Family said...

I have been waiting today to read your Not Me Monday! They always make me laugh! Thanks for sharing your stories. It is hilarious!

December 22, 2008 at 8:54 PM

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Ty's birthmark

Ty's birthmark
Ty before laser treatments

Tyler's Birthmark

A port wine stain (PWS) is a congenital birthmark that affects approximately 3 out of every 1,000 people. They are most commonly found on the face and neck, but they can be found elsewhere. The underlying dilated blood vessels cause the red/pink color of the PWS. When Ty gets upset or hot the blood flow to his face increases causing the birthmark to appear redder. When Ty is colder and the blood flows away from his face the PWS can appear invisible. If left untreated, the vessels may become enlarged and elevate the skin causing the surface to take on a cobble appearance. Sometimes the PWS can also develop into a deep purple color. Occassionally, the vessels can create overgrowth causing the area where the PWS is to become larger than normal.
PWS are present at birth and usually clearly visible. PWS grow with the person and never regress. The problems of PWS can now be treated by laser.
With different wavelengths a laser beam can be made to react upon materials of only certain colors and densities. The laser is tuned to only affect the darker more dense blood vessels deep in the skin that cause the birthmark, leaving the lighter less dense outer skin with minimal damage.Unfortunately, at this time, most people do not see complete removal of their birthmark by laser treatments. 10%-15% of those treated see 75%-100% fading, 70%-80% see 25%-75% fading, and 10%-15% see 0%-25% fading.
Treatments have a better chance of being effective when a person is still young. The skin is thinner and the mark is smaller. The skin has also not been exposed to the sun as much on a young infant or child. The sun thickens the skin and makes it darker, which in turn keeps the laser from penetrating the skin and hitting the vessels. Ty has had 15 treatments so far, beginning when he was 2 ½ months old. He will be 5 years old in Sept. 2008. He has had 80%-90% lightening in most areas, and almost complete clearing of the pws on his neck. The hardest areas to treat are the mask area around the eyes, and his lip area. Ty’s laser doctor is Dr. Roy Geronemus. He is the director of the Laser and Skin Surgery Center in New York, Ny. Ty goes to New York’s Eye and Ear Infirmiry for his laser treatments and eye surgeries/appointments for treatment under anesthesia. The healing time varies for Ty’s laser treatments. It is usually between 10-15 days, but we may see fading for up to a few months. There's no definitive number of treatments that Ty will need. So far we have always seen some improvement so we continue to get them. He will always need to maintain treatment in order to keep the PWS from getting darker again.
A PWS may also be a marker for associated syndromes such as Sturge Weber. Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Ty has had three MRIs to check if the vessels were involved in his brain. Brain involvement is one of the symptoms of SWS, and it can cause seizures. All MRIs were clean for vessels in the brain. Ty does have a malformation behind his eye in the area called the chrodial area, which is another marker for SWS. Since his birthmark covers his eyes, the blood vessels are causing the intraocular pressure in his eyes to elevate. Therefore, he has been diagnosed with glaucoma in both eyes. This malformation, along with his glaucoma, attribute to Ty’s diagnosis of SWS. One reason why his eyes stay so squinty and red all of the time is due to his glaucoma. Glaucoma can cause light sensitivity and watering of the eyes. It can also cause loss of vision and enlarged corneas. Ty has had 9 surgeries to control his glaucoma. Unfortunately, it can not be cured only controlled. He takes three different types of drops two times every day. He will most likely have frequent surgeries on his eyes for the rest of his life, or until a cure for glaucoma is found. In May of 2007, Ty developed a severe bacterial infection in his left eye. He was in the hospital for a week getting his eye injected with antibiotics. The result of this infection coupled with his severe glaucoma has left him blind in his left eye. This is also the reason for the droopiness and the physical appearance of his eye. He has since been able to see an ocularist. She formed a new partial prosthetic eye for him. You can not even tell that it isn't real. It is so cool. We are still learning day by day about PWS/SWS/Glaucoma. The hardest part about Ty's condition is not knowing what the future holds for him. We just take it day by day and rely on our faith in the Lord Jesus Christ to help us through.

Thank you for taking the time to learn a little about Ty and his condition. For more information, please visit the sources of the above information at http://www.sturge-weber.com/, http://www.birthmarks.com/, and http://www.laserskinsurgery.com/

What Ty's skin looks like after having a laser treatment

Tyler after 15 laser treatments

Sturge-Weber Syndrome Awareness