Sunday, January 4, 2009

Not me! Monday

Oh boy! It's that time again. Not me! Monday time. This little blog fun was started by Mckmama at http://www.mycharmingkids.net/ Check out the other Not me! Monday blogs and come on join in the fun.


So guess who's child took 7 days of a 10 day antibiotic before his mom realized that this particular antibiotic must be refrigerated? Nope, Not mine!



I did NOT realize this until the medicine turned a funky color and had a funky smell to it.


I have NOT probably given my child the funk now that was created by a stale antibiotic. Not me!

I did NOT read all over the bottle to find "must be refrigerated" written in lettering the size of a pencil lead. This was NOT an issue b/c we all know from last weeks Nots that my eyes are NOT that bad!


I did NOT then have to call the doctor's office and leave them a message about what a great mom I am! I did NOT proceed to then tell the nurse when she called back that I did not need anymore kids b/c I couldn't keep track of the ones I had. Who says that to a medical professional? Not me!


Evan is now NOT on another 10 day dosage when he should already be finished.

This is NOT the third time in Evan's 10 months here on Earth that I have botched him up medicine wise. I have NOT been giving him way less Tylenol to control his ear pain than his rather large 23 1/2 pound body needs. I did NOT finally ask the pharmacist b/c Evan's ears were still hurting. Apparently, the Tylenol didn't touch the pain. Hmmm! wonder why?
I did NOT give him Ty's glaucoma medicine while we were at the beach when he was just 3 months old. Nope, Not Me!

Evan did NOT climb up to the fourth stair yesterday. I did NOT hear a boom, followed by crying. Ty did NOT yell for me b/c Evan had fallen down the stairs. I mean for crying out loud, what kind of mother lets their 10 month old near the stairs;)? Certainly, NOT me!

And finally, these posts are most certainly NOT all about Evan. Poor little guy! Yes folks, don't let it scare you that I have three kiddos. I am a perfect mother!













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1 comment:

Megan @ Hold it Up to the Light said...

I love them! And, if it makes you feel better, Greer fell down the stairs today, too!! Must be a theme today!!!

Thanks for all your sweet support and comments. I hope we can get together in the coming year!!!

Love,
Megan

January 5, 2009 at 3:16 PM

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Ty's birthmark

Ty's birthmark
Ty before laser treatments

Tyler's Birthmark

A port wine stain (PWS) is a congenital birthmark that affects approximately 3 out of every 1,000 people. They are most commonly found on the face and neck, but they can be found elsewhere. The underlying dilated blood vessels cause the red/pink color of the PWS. When Ty gets upset or hot the blood flow to his face increases causing the birthmark to appear redder. When Ty is colder and the blood flows away from his face the PWS can appear invisible. If left untreated, the vessels may become enlarged and elevate the skin causing the surface to take on a cobble appearance. Sometimes the PWS can also develop into a deep purple color. Occassionally, the vessels can create overgrowth causing the area where the PWS is to become larger than normal.
PWS are present at birth and usually clearly visible. PWS grow with the person and never regress. The problems of PWS can now be treated by laser.
With different wavelengths a laser beam can be made to react upon materials of only certain colors and densities. The laser is tuned to only affect the darker more dense blood vessels deep in the skin that cause the birthmark, leaving the lighter less dense outer skin with minimal damage.Unfortunately, at this time, most people do not see complete removal of their birthmark by laser treatments. 10%-15% of those treated see 75%-100% fading, 70%-80% see 25%-75% fading, and 10%-15% see 0%-25% fading.
Treatments have a better chance of being effective when a person is still young. The skin is thinner and the mark is smaller. The skin has also not been exposed to the sun as much on a young infant or child. The sun thickens the skin and makes it darker, which in turn keeps the laser from penetrating the skin and hitting the vessels. Ty has had 15 treatments so far, beginning when he was 2 ½ months old. He will be 5 years old in Sept. 2008. He has had 80%-90% lightening in most areas, and almost complete clearing of the pws on his neck. The hardest areas to treat are the mask area around the eyes, and his lip area. Ty’s laser doctor is Dr. Roy Geronemus. He is the director of the Laser and Skin Surgery Center in New York, Ny. Ty goes to New York’s Eye and Ear Infirmiry for his laser treatments and eye surgeries/appointments for treatment under anesthesia. The healing time varies for Ty’s laser treatments. It is usually between 10-15 days, but we may see fading for up to a few months. There's no definitive number of treatments that Ty will need. So far we have always seen some improvement so we continue to get them. He will always need to maintain treatment in order to keep the PWS from getting darker again.
A PWS may also be a marker for associated syndromes such as Sturge Weber. Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Ty has had three MRIs to check if the vessels were involved in his brain. Brain involvement is one of the symptoms of SWS, and it can cause seizures. All MRIs were clean for vessels in the brain. Ty does have a malformation behind his eye in the area called the chrodial area, which is another marker for SWS. Since his birthmark covers his eyes, the blood vessels are causing the intraocular pressure in his eyes to elevate. Therefore, he has been diagnosed with glaucoma in both eyes. This malformation, along with his glaucoma, attribute to Ty’s diagnosis of SWS. One reason why his eyes stay so squinty and red all of the time is due to his glaucoma. Glaucoma can cause light sensitivity and watering of the eyes. It can also cause loss of vision and enlarged corneas. Ty has had 9 surgeries to control his glaucoma. Unfortunately, it can not be cured only controlled. He takes three different types of drops two times every day. He will most likely have frequent surgeries on his eyes for the rest of his life, or until a cure for glaucoma is found. In May of 2007, Ty developed a severe bacterial infection in his left eye. He was in the hospital for a week getting his eye injected with antibiotics. The result of this infection coupled with his severe glaucoma has left him blind in his left eye. This is also the reason for the droopiness and the physical appearance of his eye. He has since been able to see an ocularist. She formed a new partial prosthetic eye for him. You can not even tell that it isn't real. It is so cool. We are still learning day by day about PWS/SWS/Glaucoma. The hardest part about Ty's condition is not knowing what the future holds for him. We just take it day by day and rely on our faith in the Lord Jesus Christ to help us through.

Thank you for taking the time to learn a little about Ty and his condition. For more information, please visit the sources of the above information at http://www.sturge-weber.com/, http://www.birthmarks.com/, and http://www.laserskinsurgery.com/

What Ty's skin looks like after having a laser treatment

Tyler after 15 laser treatments

Sturge-Weber Syndrome Awareness